Rising Kites Family Resources

We are so glad you are here! Although you may be feeling a vast range of feelings at this time we want to congratulate you on the gift you’ve been given in your child.

We have been in your shoes and understand many of the emotions and questions you are currently navigating which is why we have worked so hard to provide these resources to your family.

As you scroll down you will find state and national resources that are available to your family. We’ve also provided a list of local contacts in the Down syndrome community willing to answer questions and offer encouragement as you navigate this new journey.

More than anything we want you to know that you are not alone in this journey and that you have a community of people cheering you on as you navigate this new and unexpected road. It is our hope that these resources provide you encouragement for the journey ahead.

Warmest wishes and congratulations,

The Grandholm Family

Hello!

Received a Rising Kites Bag?

We love hearing from our bag recipients. If you’d like to let us know what a bag meant to you or share about your little one with us you can at the link below:

State Resources

Here we’ve compiled state-specific resources to assist you in the initial days following a diagnosis. You’ll find information on insurance waivers, financial assistance programs, local Down syndrome organizations, Early intervention, and more.

National Resources

Here we’ve compiled national resources to assist you in the initial days following a diagnosis. You’ll find information on SSI, Financial Savings Plans, National Down syndrome organizations, Up-to-Date Health information and more.

International Resources

Here we’ve compiled resources for countries outside of the United States to assist you in the initial days following a diagnosis. This is a limited and growing list of available resources. We apologize if your country is not yet represented.

Rising Kites Community Page

Here we’ve gathered families throughout the United States and beyond who have children with Down syndrome. In this space you can find families within your own state or country to connect with directly. A password is required for this page. Check your Rising Kites bag materials to access or request to join here

Request a Bag

If you were directed here without receiving a bag and are new to the Down syndrome community we would love to gift you a Rising Kites bag. Request one at the link below.

Rising Kites Bereavement Community

We know that there are a number of families within this community who have lost their beautiful children prenatally or postnatally. We see you and we believe that your child was and is a gift to this world. In this space we have gathered resources and community to support you as you grieve the loss of your precious child.